On Saturday 14th May we were treated to a brilliant evening’s entertainment at the Lewes Folk Club upstairs in the Elephant & Castle pub. The star attraction was “The Old Firm Plus One” comprising Marilyn Bennet, Iris Bishop, Denise & Stuart Savage and Jim Ward. Other acts were Charlotte Olive & Richard Spong and Martyn Wyndham-Read. The Lewes Folk Club pledged the gate money ( a not inconsiderable sum) to C-Side several of whose members were pleased to attend a thoroughly enjoyable evening.
C-Side has a great working relationship with Albion in the Community (AITC); over the years we’ve had many visits from their experts who have spoken to us on physical exercise & health matters. We were very pleased to welcome Mari Clark to our meetings on Thursday 24th January 2022. She gave us an interesting and insightful guide on nutrition and what consitutes a healthy diet; this being such a vital area of interest for all those living with bowel and anal cancer and other digestive diseases.
To find out more of what Mari does click on the AITC logo above or on this link.
To learn more of Mari’s background and considerable experience go here.
Notes from the talk given by “JC” at the C-Side meeting on Tuesday 30th October, 2018
JC gave a detailed, personal
and informative talk, answering all the questions we had prepared for him:
How do surgeons combat tiredness? What is the limit on hours they can work?
Do surgeons get nervous?
Regarding long term symptoms : what ought we to
One of our members has a split in the wound
following a stoma. It requires packing
every day. He had no warning that this
might be a result of the operation. How
common is this situation?
How do you deal with a blocked ileus?
Can you explain the research you are doing in Italy regarding the colon when re-sectioned.
What is the current expected waiting times for
treatment and the situation regarding
How much theatre time are surgeons allotted each
How are the cuts affecting Bowel cancer
Do you have any statistics for the year
regarding the number of operations/ survival rates/ costs?
The personal questions provided an insight into the work of JC
and his colleagues. He made the
Operations can take between 1.5 and 6 hours, and
can last 9- 10 hours. He can get tired
and can deal with two major cases in one day.
There are no limits to the hours that he works, although it is supposed
to be 56 hours.
He does get nervous as he has an understanding
of all that can go wrong. He downplays
these but is often working to within fractions of a millimetre. Sometimes difficult decisions have to be made
such as whether to sacrifice the spleen instead of the bowel. There is a high level of stress in the
operating theatre which is difficult to differentiate with nervousness.
There is altered bowel function after surgery
that can take anything from 8 weeks to 2 years for the system to settle. Lower
rectal surgery can cause difficult day to day functioning. Complications in the anal canal system has a
risk of infection. Perineal wound
surgeries can have more prolonged problems.
This is not something that can always be predicted.
Ileum surgery often causes vomiting and there
can be a danger of aspirational pneumonia.
The contents of the bowel must be kept out of the lungs. Tubes are inserted to alleviate
vomiting. Most blockages to the ileum
correct themselves and are often twisted or pinched. If there is a food bolus obstruction this may
require surgery. If there is a
parastomal hernia as a result of a stoma where several bits of bowel stick out
outside the muscle, it can be decompressed to see if it will settle. Further surgery may be necessary.
Italian research has shown that a fluorescent
substance can show up under ultraviolet light indicating blood supply to the bowel
during surgery. This can very
effectively show whether there is a sufficient blood supply for an operation,
which can reduce the likelihood of failure during anastomoses (join in the bowel). Anastomotic failure can be reduced from 10%
to 1.5% using this system. At present
the Consultant Colorectal Surgeons are trying to persuade the Trust to use this technology. NICE should make it a mandatory part of the
surgery. It also has benefits in other
surgeries such as gall bladder surgery.
This massive piece of research adds about 3 minutes to an operation and
costs about £10,000 – £100,00 with the higher figure being for a laparoscopic
stick. It makes operations much safer.
and administrative considerations:
have an issue with waiting times for Colorectal Cancer surgery but is
experiencing the best situation for years – diagnosis, decision to treat and
date for surgery is approximately 2-3 weeks.
But there are still delays before the decision to operate as this
depends on colonoscopies, MRI scans and CT scans. At present there is a shortage of scanners
and radiologists. Ideally diagnosis to
surgery should take 4 weeks. However, although
cancer takes priority, there are cancellations when the hospital is too full or
In Brighton of 300-400
patients are diagnosed, 70-100 need surgery.
There are 150-250 Bowel surgery
operations annually. 4 surgeons are
rectal specialists and 6 specialise in colonic surgery (the 4 who do rectal
surgery plus 2). They are audited
nationally and outcomes are well within the accepted range of mortality.
government cuts do not affect serious health problems such as cancer, heart
disease and diabetes.
As a final note, JC
explained that Dukes staging (A, B and C) is now historic. Now TNM (Tumour, Node and Metastasis) staging
is used to describe where a patient is
in his or her bowel cancer.
At our June meeting KIrtsteen Daly gave a talk on the role that the Family History Service and genetics science plays in establishing the risk of inheriting diseases – particularly colorectal and similar cancers. It was a brilliant and thought provoking presentation and Kirteen has given permission for her notes to be recorded here in video form.
Please use the control bar at the bottom of the screen to manage the video playback, sound level etc;, it may also be viewed full-screen.
Here’s some related links (just click on the icon):-
The Colorectal Family History Service is based at the Royal Sussex County Hospital. The service assesses your family history of cancer to determine appropriate screening and whether or not genetic investigations are possible within your family. The service is lead by Dr Suzi Green and managed by Family History Nurse Specialist Kirsteen Daly. A referral from your GP or hospital consultant is required.
We’re passionate about our guts! Guts UK’s vision is a world where digestive disorders are better understood, better treated and everyone who lives with one gets the support they need.
The Hereditary Colon Cancer Foundation is a nonprofit organization serving the hereditary colorectal cancer community. Our vision is to be a beacon of light – extending life expectancy, enhancing life quality, and instilling hope in those diagnosed with hereditary colon cancer syndromes.
LSUK was founded in early 2014 by a group of people that originally met on a social media support group. Being frustrated by the lack of information and stories of erratic screening regimes throughout the UK, we came together to change things for people affected by Lynch Syndrome for the better.
Molecular testing strategies for Lynch syndrome in people with colorectal cancer. Diagnostics guidance [DG27] Published date:
You might hear the term ‘carer’ and think that’s not you, but if you are supporting someone with cancer there is information and support that is available for you.
On Friday June 16th as part of Carers Week we’re holding an event at the Macmillan Horizon Centre where people can find out more about the different types of support available for people caring and supporting someone with cancer.
At The Macmillan Horizon Centre, 2 Bristol Gate, Brighton, BN2 5BD (across the road from the Sussex Cancer Centre at the Royal Sussex Hospital in Kemptown, Brighton)
From 10:30 – 13:00 there will be:-
opportunities to meet others who are supporting a loved one
information about support the Horizon Centre offers
a chance to be pampered (ear acupuncture, facials, seated acupressure massage and make-up make over by Boots Nr.7 advisors to get the summer glow)
information stands from support organisations across Sussex
From 13:30 – 15:00 there will be:-
A Focus Group session – an opportunity for to people caring for someone with cancer and also carers with a cancer diagnosis, to discuss information and support available and explore any additional needs not being met.
If you are not able to attend the focus group but would like to have a say about the needs of carers please do let us know and we would be happy to arrange to come along to your group or organisation to run a focus group session.
To reserve a place: please e-mail firstname.lastname@example.org or phone 01273 468770 or visit us at The Macmillan Horizon Centre, 2 Bristol Gate, Brighton, BN2 5BD (across the road from the Sussex Cancer Centre at the Royal Sussex Hospital in Kemptown, Brighton)
You can find out more information about the Macmillan Horizon Centre at www.macmillan.org.uk/horizoncentre and details about carers week at www.carersweek.org
With Kind regards, Jane. Jane Viner Macmillan Engagement Coordinator – South East Email: email@example.com Telephone: 07790 015 448
During our forthcoming AGM on 31st January 2017 we will be asked to re-affirm our “Governing Documents”. There are two of them: our Constitution and our Aims & Ojectives. What they are about is self explanatory, but they are important; they govern how we are structured, what we want to achieve and how we should go about it. Please read them by clicking on the icon or the title along-side of it. If there are any changes you think are merited then please advise a committee member, or contact the site administrator via the Contact Us page of this website, in order that the proposal can be put on the agenda for discussion the meeting.
C-Side is not primarily a fund-raising charity, but we do need some cash to keep going and paying for those little things that make meetings more enjoyable and occassionally celebratory. To see how we’ve spent our money this past year then please look at a summary of our accounts.
Shown above is the menu for our celebratory dinner on the 6th September. If you are a C-Side member you and your partner are warmly invited to come along to an exceptional evening of food, drink and conversation. If you have not already done so, please select from the Starters, Mains and Desserts lists and email C-Side showing, against your name(s), the three numbers of the items of your choice. Thanks to a grant from Macmillan and the generosity of a benefactor this is free to C-Side members and their partners, you are only required to pay for drinks.
The Waterfront Brasserie (otherwise, the Brasserie Fish & Grill) is located on the Boardwalk facing the marina. As an aid to navigation, the large picture below shows the entrance and the two pictures beneath shows the views on either side of it.
There is, I understand, free parking for 4 hours in the Marina’s multi-storey car-park. The Marina is quite well served with public transport, the No. 7 has a regular service, you could check for other buses and detailed time-tables by checking out to the Brighton Bus Company’s Journey Planner.