Category Archives: info

SBS – Financial Wellbeing Webinars for People affected by Cancer and other Illnesses

St Bernard Support (SBS) provides assistance to people affected by life limiting illnesses such as cancer, heart disease etc. The people they help include people diagnosed with life limiting illnesses, their families and their carers. They also provide assistance and training to medical professionals and other organisations (charities, support groups etc) to enhance their ability to support people.

On 14th June and 25th June 2018, SBS will be hosting Webinars covering the following topics at the stated times:-

  • 11 am – Pensions
  • 12 pm – Wills, Trusts & Lasting Powers of Attorney
  • 2 pm – Welfare Benefits

Please contact admin@s-b-s.org.uk or call 0800 7720723 to participate in the webinar. Click on the logo to connect to their website and find out more.

Free Macmillan Training Courses

Jane Viner (Macmillan Engagement Lead – South East) would like you to be made aware of this programme of training opportunities. To see a brochure for details of all courses to be run throughout the South-East click on the picture. Here is a list FAQs (frequently asked questions). As you can see, some courses are designated for Macmillan and Health care professionals, but those suitable for Cancer Support Groups, Macmillan Volunteers and People Affected by Cancer are summarised below:-

Listening and Responding
We all like to think of ourselves as good listeners, but do you want to do more to develop our listening skills, so that you can better support people affected by cancer? This workshop will help you to identify the differences between listening and other helping strategies such as providing information and advice as well as developing and practising your listening and responding skills in a supportive environment.

5th February 2018 – Guildford
15th June 2018 – Maidstone
21st September 2018 – Brighton


 Speaking with Confidence
This one day introductory public speaking workshop will bring out your natural speaking strengths.
Learning outcomes:-

  • Learn to speak with clarity and confidence.
  • Address fears and overcome nerves.
  • Learn how to engage an audience.
  • Use your experience to write a dynamic speech, structuring your content to greatest impact and then deliver a speech with confidence and authority.
  • Dealing with questions during speaking.
  • Applying these skills to next steps in your volunteering or public life.
  • Find a way to enjoy speaking.

14th March 2018 – Guildford
6th April 2018 – Maidstone
9th May 2018 – Brighton


Group Facilitation Skills
This one day workshop will help to develop your skills in working with groups in a facilitative style.
Learning outcomes:-

  • Create a positive environment for group learning.
  • Identify key skills and qualities of a group facilitator.
  • Enhance communication and influencing skills.
  • Learn how to manage challenging behaviour
  • Raise awareness of learning styles and the impact of group dynamics.

27th April 2018 – Stevenage
6th June 2018 – Guildford
29th August 2018 – Eastbourne


 How do I apply?

To book on to a course or for further details about the venue, facilities, and timings, please contact your Learning & Development Team on: LondonSELearning@macmillan.org.uk  or Tel: 01904 756447 


Help develop How Macmillan Engages with People Affected By Cancer and Local Communities

We would like people living with cancer to have a role in shaping the future of Macmillan, this work will help us to understand the best ways of including people living with cancer in the planning, delivery and evaluation of our work in the community.
We are engaging people living with cancer in a number of different ways. We are visiting local support groups and asking for opinion and feedback from members during the meeting. We are also carrying out 1 x 1 sessions with people if they are unable to join us in a meeting.

If you would like to get involved and for us to come along to your support group or meet you on a one to one basis please do let me know: jane Viner – Macmillan Engagement Lead – jviner@macmillan.org.uk

We would like to learn about the experiences and needs of LGBTQ people in Brighton and Hove and Sussex who are affected by cancer 

Macmillan Cancer Support and Brighton & Hove LGBT Switchboard are working together to engage with the local community to learn about the experiences and needs of LGBTQ people in Brighton and Hove and Sussex who are affected by cancer.  This engagement work will be used to inform how LGBTQ people affected by cancer can be best supported; and to identify areas where improvements to patient experience can be made through Macmillan and in collaboration. 
Switchboard has created two surveys as part of the project and would love to hear from as many people as possible.  One is for LBGTQ community members affected by cancer (including partners, carers and family members of people with cancer); the other is for professionals (including volunteers) supporting LGBTQ people affected by cancer.  Switchboard is also holding two focus groups to learn more about the experiences of these community members and professionals.  Take either of the surveys to receive details of the focus groups, or email chris.brown@switchboard.org.uk.

Survey links:
LGBTQ community members survey: https://www.surveymonkey.co.uk/r/J7H7R7X
Professionals supporting LGBTQ people affected by cancer survey: https://www.surveymonkey.co.uk/r/J98DWHT

Have Your Say About Macmillan’s Community Engagement Values and Principles

At Macmillan Cancer Support we understand how important it is for people living with cancer to have their views and opinions heard, particularly about their cancer experience. We want to be clear in our commitment to engaging with people living with cancer and their families in their own communities. As a part of this commitment, we are developing a set of community engagement values and principles and we need to ensure that they are meaningful and have people living with cancer at the heart of the process.
For us to do this well, we need to really understand how you feel about the values and principles that we’re proposing. We’d really like your feedback on what they mean to you; whether we have missed something important; what it would look like to you when they are working well and anything else you think we need to know. 


So now you’re ready to get involved, we’d be grateful if you could take a short survey (it shouldn’t take longer than 10 – 15 minutes) via the following link.  https://www.surveymonkey.co.uk/r/EngagementVP


If you would like more information about any of the above please do let me know.

With kind regards,
Jane Viner
Macmillan Engagement Lead – South East
Email: jviner@macmillan.org.uk  
Telephone: 07790 015 448

Administrator for South East Service Development Team
Email: south&eastadmin@macmillan.org.uk
Telephone: 01904 756 463
Address: Macmillan Cancer Support, 3 Fawcett Street, York, YO10 4AH

 

 

David Schneider talks to palliative care consultant Kathryn Mannix

David Schneider is terrified of death. In his two editions of One to One, he wants to try to overcome his fear by talking to those who have first-hand understanding of dying. In this programme, he talks to Palliative Care consultant, Kathryn Mannix. With almost forty years of clinical experience and witnessing over twelve thousand deaths, she believes that a ‘good death’ is possible even when you are seriously ill. She explains the process of dying to David. This, she believes, if accepted by the patient, removes much of the anxiety and fear surrounding the end of life.

 To listen to a short, edited, clip from this episode just operate the controls below:-


Jenny Diski, a writer, died in 2016. She was also interviewed a few months before her death by David Schneider about her struggle with cancer and her feelings knowing that death was approaching.  To read and hear David’s interview with her please visit this page.

The Elephant in the Room?

In this unprecedented book, palliative medicine pioneer Dr Kathryn Mannix explores the biggest taboo in our society and the only certainty we all share: death.

Told through a series of beautifully crafted stories taken from nearly four decades of clinical practice, her book answers the most intimate questions about the process of dying with touching honesty and humanity. She makes a compelling case for the therapeutic power of approaching death not with trepidation but with openness, clarity and understanding.

With the End in Mind is a book for us all: the grieving and bereaved, ill and healthy. Open these pages and you will find stories about people who are like you, and like people you know and love. You will meet Holly, who danced her last day away; Eric, the retired head teacher who, even with Motor Neurone Disease, gets things done; loving, tender-hearted Nelly and Joe, each living a lonely lie to save their beloved from distress; and Sylvie, 19, dying of leukaemia, sewing a cushion for her mum to hug by the fire after she has died.

These are just four of the book’s thirty-odd stories of normal humans, dying normal human deaths. They show how the dying embrace living not because they are unusual or brave, but because that’s what humans do. By turns touching, tragic, at times funny and always wise, they offer us illumination, models for action, and hope. Read this book and you’ll be better prepared for life as well as death.

(n.b. the above review is by Goodreads – for further information go here. The book is also available in the UK from other on-line sources such as Amazon and stores such as Waterstones).