Category Archives: Meetings

Are you supporting someone going though cancer?

You might hear the term ‘carer’ and think that’s not you, but if you are supporting someone with cancer there is information and support that is available for you.

On Friday June 16th as part of Carers Week we’re holding an event at the Macmillan Horizon Centre where people can find out more about the different types of support available for people caring and supporting someone with cancer.

At The Macmillan Horizon Centre, 2 Bristol Gate, Brighton, BN2 5BD (across the road from the Sussex Cancer Centre at the Royal Sussex Hospital in Kemptown, Brighton)

From 10:30 – 13:00 there will be:-

  • opportunities to meet others who are supporting a loved one
  • information about support the Horizon Centre offers
  • a chance to be pampered (ear acupuncture, facials, seated acupressure massage and make-up make over by Boots Nr.7 advisors to get the summer glow)
  • information stands from support organisations across Sussex
  • Refreshments available

From 13:30 – 15:00 there will be:-

A Focus Group session – an opportunity for to people caring for someone with cancer and also carers with a cancer diagnosis, to discuss information and support available and explore any additional needs not being met.

If you are not able to attend the focus group but would like to have a say about the needs of carers please do let us know and we would be happy to arrange to come along to your group or organisation to run a focus group session.

To reserve a place: please e-mail horizoncentre@macmillan.org.uk or phone 01273 468770 or visit us at The Macmillan Horizon Centre, 2 Bristol Gate, Brighton, BN2 5BD (across the road from the Sussex Cancer Centre at the Royal Sussex Hospital in Kemptown, Brighton)

You can find out more information about the Macmillan Horizon Centre at www.macmillan.org.uk/horizoncentre and details about carers week at  www.carersweek.org

With Kind regards, Jane.
Jane Viner
Macmillan Engagement Coordinator – South East
Email: jviner@macmillan.org.uk
Telephone: 07790 015 448

C-Side’s 2017 AGM – Governing Documents

During our forthcoming AGM on 31st January 2017 we will be asked to re-affirm our “Governing Documents”. There are two of them: our Constitution and our Aims & Ojectives. What they are about is self explanatory, but they are important; they govern how we are structured, what we want to achieve and how we should go about it. Please read them by clicking on the icon or the title along-side of it. If there are any changes you think are merited then please advise a committee member, or contact the site administrator via the Contact Us page of this website, in order that the proposal can be put on the agenda for discussion the meeting.

C-Side is not primarily a fund-raising charity, but we do need some cash to keep going and paying for those little things that make meetings more enjoyable and occassionally celebratory. To see how we’ve spent our money this past year then please look at a summary of our accounts.

C-side Constitution

 

 

C-Side Aims and Objectives

 

 

 

C-Side’s Birthday Bash

 

Bash Menu1Shown above is the menu for our celebratory dinner on the 6th September. If you are a C-Side member you and your partner are warmly invited to come along to an exceptional evening of food, drink and conversation. If  you have not already done so, please select from the Starters, Mains and Desserts lists and email C-Side showing, against your name(s), the three numbers of the items of your choice. Thanks to a grant from Macmillan and the generosity of a benefactor this is free to C-Side members and their partners, you are only required to pay for drinks.

The Waterfront Brasserie (otherwise, the Brasserie Fish & Grill) is located on the Boardwalk facing the marina. As an aid to navigation, the large picture below shows the entrance and the two pictures beneath shows the views on either side of it.Grill1Brass 1Brass 5

 

 

 

 

 

 

 

 

 

There is, I understand, free parking for 4 hours in the Marina’s multi-storey car-park. The Marina is quite well served with public transport, the No. 7 has a regular service, you could check for other buses and detailed time-tables by checking out to the Brighton Bus Company’s Journey Planner.

 

C-Side Christmas Lunch – November 24th, 2015

 

12.30 for 1.00 p.m.

Avis Road
Newhaven
East Sussex
BN9 0DH
By Car: Follow the brown signs from the A26 & A259

By rail: We are three quarters of a mile from
Newhaven railway station.
Train times: 08457 484950 www.networkrail.co.uk

By bus: Regular bus services to Denton Corner
Bus times: 0871 200 2233 www.traveline.info

Click Here For Map

We need to confirm final number soon, please contact Denise!

 

“Sharing Good Practice – The Recovery Package” Conference, 8th October 2015

RecoveryPackageDiagram-480On 29th March 2013 BBC News on-line broadcast this:-
“All cancer patients should receive a “recovery package” at the end of their treatment offering ongoing support, the Department of Health (DoH) has said … three in four patients are not given enough information on coping with long-term effects of the illness, its report with a leading charity suggests … as a national survey of cancer survivors indicated about a quarter of people were feeling isolated after being treated for the illness … and almost 30% said they had numerous issues that were not being addressed, including fears about their cancer spreading. Macmillan Cancer Support, which helped develop proposals for a recovery plan, estimated that about 200,000 people were not getting a package of support following their treatment.” You can read the entire news report by clicking here

Since then Macmillan have developed and refined this Recovery Package (click on the above thumbnail to find out more ….). NHS England are encouraging all CCGs, as a matter of urgency, to adopt this Package. The conference on 8th October 2015 was organised by the South East Strategic Clinical Network in order to present the Package to an invited audience of CCG cancer/recovery package leads; acute trust cancer leads; primary care cancer leads and anyone who has an interest in supporting patients after cancer treatment, including patient support groups.

The four main components of the Recovery Package, which the patient must be provided with, are as follows:-

1) Holistic Needs Assessment
2) Treatment Summary
3) Cancer Care Review
4) Education & Support

The first part of the conference was given over to contributions from speakers covering a) how the uptake is progressing across the South East SCN, b) why it is important, c) NHS expectations of the strategy, c) implementing the Package across acute and primary care, d) CCG commissioning of the Package. The afternoon was taken up with attendees forming group discussions on five major topics surrounding the Package and its implementation.

Moving On – Living Well Conference 25th July, 2015

A Summary of the event

An exciting collaboration took place on Friday 24th July, 2015 – Brighton Hospital Macmillan colorectal team worked in association with C-Side Colorectal Cancer Support group to hold an all-day event from 10am – 4.00pm at the Audrey Emerton Building, Eastern Road, Brighton BN2 5BE. Patients, carers and professionals filled the hall on an inspiring day with excellent speakers, activities and opportunities to network. There was also magnificent support from our commercial and charity partners whose exhibition stands were a great attraction. It was a free event, with refreshments and lunch provided, but by invitation only.

The aim for the day was to help bowel and anal cancer patients to help themselves once treatment was finished. There were four objectives for the day which were well covered. We wanted:
• to show patients and professionals working together on a joint presentation;
• to provide a day of information, encouragement and advice that patients could consider in order to help them “move on” and “live well”;
• to provide opportunities to involve delegates in physical activities, should they wish to do so;
• to provide a model for future events.

What was special about this event was the unique collaboration between professionals and patients. Denise Savage from C-Side hosted the event and worked with Gill Hilton and Sarah Back, the two Brighton Macmillan Colorectal Nurse Specialists to present a lively programme of speakers and activities.

The conference was opened by Matthew Kershaw, Chief Executive of Brighton and Sussex University Hospital, who gave the conference his full seal of approval, adding that he wished he could stay, but pressures of work did not allow for this.

Following our keynote speaker, Michaela Rossman and Kristina Parkinson spoke for Macmillan. Michaela manages the Direct Volunteering Services for Macmillan in Sussex, and Kristina is the Macmillan Development Manager for Sussex. Both spoke ably about what is available locally to support patients and carers such as Team Up and the Brighton Buddy Scheme.

Following this, another C-Side member, Ernie Milner worked with Duncan Gilbert, a Clinical Oncologist on a question and answer presentation. Duncan is also Honorary Senior Lecturer and the Multi-disciplinary Team Leader for colorectal cancer in the Brighton Hospitals. Sitting in armchairs, Ernie asked the sorts of questions that any cancer patient might wish to ask about their aftercare following surgery and treatment. This generated plenty of lively questions from the audience which Duncan could answer with authority. What came over clearly is the will to streamline administration with the appointment of Claire Theobald as the Macmillan team’s new Administrative Officer, and to ensure that patients know what will happen in the months and years following treatment.

Erika Adler who is a C-Side member and has a long history in catering and cookery education introduced our next speaker who was Mhairi Donald, a specialist cancer dietician who explained what we should and shouldn’t eat. Mhairi’s popular talk was punctuated with humour and generated several questions from the audience. Her book “Every Mouthful Counts” was on sale at the C-Side exhibition stand and sold really well.

Gill Hilton then returned to the presenters’ platform to explain what we can now expect from Primary Care in bowel and anal cancer treatment. She explained how GPs are being kept in the information loop and how we can urge them to ensure they expedite up-to-date information.

Just before lunch the energetic Julie Nye, a former GP who believes strongly in the power of singing to assist in recuperation, amazed us all by getting the audience to sing as a four-part jazz quartet!

Unfortunately a heavy rain storm prevented the planned “Healthy Walk” along Brighton seafront from taking place, but Corinna from Healthy Walks explained the scheme and we managed to get some entertaining and impromptu exercise from Siobhan Meaker and her colleague. Siobhan, from Albion in the Community, was scheduled to speak later in the day.

Lunch was arranged in two sittings to cater for the large number of people who attended the event. Delegates had an opportunity therefore during the lunch break to mix, to explore the range of exhibition stands and to view the art exhibition that had been provided by the “Cancer Landscapes” team. The art work included paintings by a professional artist – Michel Petrone – whose book “The Emotional Cancer Journey” was for sale on the C-Side exhibition stand. Also on view were paintings by non-professional artists who had had cancer and who expressed their experiences in visual form often with impressive and disturbing effect.

After lunch we came to the part of the programme that dealt with the emotional issues that often confront bowel and anal cancer patients and their carers. This is perhaps an area that we are least prepared for and Hazel Ainsley explained not only how common emotional issues were following treatment but where help was available. Hazel used to be the Senior College Counsellor and a staff trainer at City College Brighton for over 25 years, and now volunteers at the Sussex Cancer Centre, working with Laura Pritchard, the Macmillan Nurse Therapist. Hazel’s presentation on “Head and Heart” proved really interesting and inspiring.

There followed the C-Side presentation which had been prepared by Ernie Milner believing it to be more effective than getting all our members on stage to talk about “The Value of Support Groups”, Ernie had assembled an 18 minute sound and visual presentation following hours of audio recording (which required careful and intelligent editing) and a range of photographs from so many members that it is impossible to name them all! Both patients and carers were represented and the effect provided a comprehensive picture of the different members’ views on how C-Side in particular had helped them and continues to help them through difficult times. Comments from delegates showed that they found it both effective and moving, and C-Side is likely to recruit some new members as a result!

We then welcomed the return of Siobhan Meaker from Albion in the Community. Brighton is very fortunate to have the Brighton and Hove Albion Amex Stadium nearby and Siobhan is testament to their commitment to involve the community in physical activity. Siobhan has the makings of a first rate stand-up comic as her presentation was lively and entertaining. She told us particularly about the new AITC Brighter Outlook initiative which is starting up soon to get people moving and tailoring activities to their abilities.

Throughout the day, we had reminded people to complete our evaluation form, and to enter our end of day raffle. We were very lucky that Sherree Fagge, the Chief Nurse at the Brighton and Sussex University Hospitals closed our conference and drew the raffle. In her closing speech Sherree praised the collaboration between professionals and patients and explained that she was responsible for over 3,000 nurses. We were fortunate to have her speaking with such a busy schedule and know that messages of our conference will be circulated further.

The entire day was videoed. While it would be great to hear the 4-part jazz quartet singing, there will also be further developments after this day. Our 4th objective: “to provide a model for future events” will take place once the video has been edited. Gill, Sarah and their team intend to put on a series of smaller sessions on single themes, such as Diet, Physical Exercise, Emotional Wellbeing or other topics. Each presentation at today’s conference could form the basis of such a session and have a ripple effect in the future.

We would like to thank Macmillan for their generous grant towards this event and to the Saltdean and Rottingdean Lions who contributed towards the raffle prizes and other sundry expenses.

The conference could not have taken place without the help of our commercial and charity partners who were all represented today:
Biokult
Coloplast
iMedicare
Dansac
Salts
Penlan Medical
Macmillan
Albion in the Community
Beating Bowel Cancer
BSUH Family History Service
Saltdean and Rottingdean Lions
Look Good, Feel Better
BSUH Stoma care Service
PRDA
Julie Nye
Carers Centre

Thanks were also due to all the speakers; to the Moving On – Living Well Committee who had spent at least 6 months in preparation for this conference; to the marvellously helpful folk at the Audrey Emerton Building and especially to Gill Hilton and Sarah Back and their team who had worked so closely with C-Side in the preparation and presentation of this ground-breaking event.

Denise Savage
August, 2015