Category Archives: Meetings

Family History Service

At our June meeting KIrtsteen Daly gave a talk on the role that the Family History Service and genetics science plays in establishing the risk of inheriting diseases – particularly colorectal and similar cancers. It was a brilliant and thought provoking presentation and Kirteen has given permission for her notes to be recorded here in video form.

Please use the control bar at the bottom of the screen to manage the video playback, sound level etc;, it may also be viewed full-screen.

 

Here’s some related links (just click on the icon):-

The Colorectal Family History Service is based at the Royal Sussex County Hospital. The service assesses your family history of cancer to determine appropriate screening and whether or not genetic investigations are possible within your family. The service is lead by Dr Suzi Green and managed by Family History Nurse Specialist Kirsteen Daly. A referral from your GP or hospital consultant is required.


We’re passionate about our guts! Guts UK’s vision is a world where digestive disorders are better understood, better treated and everyone who lives with one gets the support they need.

 

The Hereditary Colon Cancer Foundation is a nonprofit organization serving the hereditary colorectal cancer community. Our vision is to be a beacon of light – extending life expectancy, enhancing life quality, and instilling hope in those diagnosed with hereditary colon cancer syndromes.

LSUK was founded in early 2014 by a group of people that originally met on a social media support group. Being frustrated by the lack of information and stories of erratic screening regimes throughout the UK, we came together to change things for people affected by Lynch Syndrome for the better.

 

Molecular testing strategies for Lynch syndrome in people with colorectal cancer. Diagnostics guidance [DG27] Published date:

Are you supporting someone going though cancer?

You might hear the term ‘carer’ and think that’s not you, but if you are supporting someone with cancer there is information and support that is available for you.

On Friday June 16th as part of Carers Week we’re holding an event at the Macmillan Horizon Centre where people can find out more about the different types of support available for people caring and supporting someone with cancer.

At The Macmillan Horizon Centre, 2 Bristol Gate, Brighton, BN2 5BD (across the road from the Sussex Cancer Centre at the Royal Sussex Hospital in Kemptown, Brighton)

From 10:30 – 13:00 there will be:-

  • opportunities to meet others who are supporting a loved one
  • information about support the Horizon Centre offers
  • a chance to be pampered (ear acupuncture, facials, seated acupressure massage and make-up make over by Boots Nr.7 advisors to get the summer glow)
  • information stands from support organisations across Sussex
  • Refreshments available

From 13:30 – 15:00 there will be:-

A Focus Group session – an opportunity for to people caring for someone with cancer and also carers with a cancer diagnosis, to discuss information and support available and explore any additional needs not being met.

If you are not able to attend the focus group but would like to have a say about the needs of carers please do let us know and we would be happy to arrange to come along to your group or organisation to run a focus group session.

To reserve a place: please e-mail horizoncentre@macmillan.org.uk or phone 01273 468770 or visit us at The Macmillan Horizon Centre, 2 Bristol Gate, Brighton, BN2 5BD (across the road from the Sussex Cancer Centre at the Royal Sussex Hospital in Kemptown, Brighton)

You can find out more information about the Macmillan Horizon Centre at www.macmillan.org.uk/horizoncentre and details about carers week at  www.carersweek.org

With Kind regards, Jane.
Jane Viner
Macmillan Engagement Coordinator – South East
Email: jviner@macmillan.org.uk
Telephone: 07790 015 448

C-Side’s 2017 AGM – Governing Documents

During our forthcoming AGM on 31st January 2017 we will be asked to re-affirm our “Governing Documents”. There are two of them: our Constitution and our Aims & Ojectives. What they are about is self explanatory, but they are important; they govern how we are structured, what we want to achieve and how we should go about it. Please read them by clicking on the icon or the title along-side of it. If there are any changes you think are merited then please advise a committee member, or contact the site administrator via the Contact Us page of this website, in order that the proposal can be put on the agenda for discussion the meeting.

C-Side is not primarily a fund-raising charity, but we do need some cash to keep going and paying for those little things that make meetings more enjoyable and occassionally celebratory. To see how we’ve spent our money this past year then please look at a summary of our accounts.

C-side Constitution

 

 

C-Side Aims and Objectives

 

 

 

C-Side’s Birthday Bash

 

Bash Menu1Shown above is the menu for our celebratory dinner on the 6th September. If you are a C-Side member you and your partner are warmly invited to come along to an exceptional evening of food, drink and conversation. If  you have not already done so, please select from the Starters, Mains and Desserts lists and email C-Side showing, against your name(s), the three numbers of the items of your choice. Thanks to a grant from Macmillan and the generosity of a benefactor this is free to C-Side members and their partners, you are only required to pay for drinks.

The Waterfront Brasserie (otherwise, the Brasserie Fish & Grill) is located on the Boardwalk facing the marina. As an aid to navigation, the large picture below shows the entrance and the two pictures beneath shows the views on either side of it.Grill1Brass 1Brass 5

 

 

 

 

 

 

 

 

 

There is, I understand, free parking for 4 hours in the Marina’s multi-storey car-park. The Marina is quite well served with public transport, the No. 7 has a regular service, you could check for other buses and detailed time-tables by checking out to the Brighton Bus Company’s Journey Planner.